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Patient Stories

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My Condition
Abbie’s Intermittent Catheter Story Awareness needed for Interstitial Cystitis Being Diagnosed with Coeliac Disease Changed my Life Bowelbabe Saved my Life Caring for someone with bladder issues, autism and dementia Natalie’s Bowel Cancer Story Charlie’s story – Dealing with sore skin and stoma bag leakages The Crippling Pain of Endometriosis Crohn’s Disease hasn’t beaten me Diary Of A Kidney Warrior Dysautonomia and my Catheter Endometriosis – The Destructive Disease Endometriosis is more than just a Bad Period My journey back to wholeness after stage 4 cancer Fitness gave me confidence after stoma surgery Hannah’s Story – Interstitial Cystitis Having a stoma saved my life Having A Urostomy Improved My Life I’m back living life after beating bowel cancer There’s light after stoma surgery Living with Irritable Bowel Syndrome Living with Kidney Disease Lucinda’s Story – BAD/BAM My endometriosis was misdiagnosed as IBS My Journey with BAM My Stoma gave me Freedom My videos help others with Interstitial Cystitis  How I coped with my new Stoma during Lockdown Patient Stories Archive Marcus – Living with Bladder Incontinence Pilates has helped me through Menopause Primary Ovarian Insufficiency (POI) Real Life Stories – Lauraine Speaking out helps me deal with IBS Spotlight on Fowler’s Syndrome Urinary Retention and Fowler’s Syndrome Urinary Tract Infections have ruled my life

Patients often become experts on their own medical condition – find out how these community members manage their healthcare, and learn from the experts. Everyone with a bladder or bowel control problem will have a different story to tell and we are proud to be able to share so many of these with you.

These bladder and bowel patient stories can offer hope, inspiration and practical guidance to others in a similar situation.  Being able to identify with someone and make a connection can be the first step towards an eventual recovery – each story could help change someone’s life.

Please contact us to find out how you can share your story and how this could help raise awareness.

By working together we can help people understand more about these problems, the challenges faced and how and where to access health professional support.

Read some of our recent stories below.

Patient Stories

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